Expect a very short post, Peace keeper wars is on Scifi.

Well, the family was really cool about my not having ink today. My sister reminded me this was not the first time I was told I would be printed on one day, and ended up being printed on another.

I got to my parents in more than enough time to reach my sisters. Left the car there and traveled to Palmer with my parents. I don't like going to Palmer, I end up stinking of smoke, and the trip exhausts me.

My family reacts oddly to my discussing this illness. No one wants to use the word lupus, it is my 'issue' my 'problem'. I wonder why it is so hard for my family to say the word? Is it the word which cannot be spoken? Does my family think if they don't say the word it means I am going to get better. Can they not say it? Or do they think I am healthy, that there is nothing wrong with me? How many times do I have to mention my need for assistance, my physical limitations, my medications?

Sometimes I just want to grab people and scream in their faces, 'I am going to die! Stop pretending I am not!   I need your assistance dealing with this!'

I was laying on the couch, having major problems breathing, I wanted to take my pain medication, but I had no idea how long we were going to be there, and if I would need to be driving soon. So I dared not take my meds. Joey, one of my nephews, asked me if I had a cold, a cold! I looked at him and said, 'No honey, I'm very sick, I have a bad illness.' I mean just what do I say to him? What do I say to any of these kids.

I got to bring home lots of sweet stuff, some pumpkin cheese cake, some torta, pumpkin pie, and a few cupcakes. I have already eaten some torta, and a cupcake. Next I plan on attacking the pumpkin pie. I am going to leave the pumpkin cheesecake for taureanbabe.